Den rædderlig
"De riges børn får autism, de fattiges børn er bare omsorgssvigtede"
Diagnoser er mange ting og et stort problem er, at vi er alt for mange der føler os i stand til at diagnosticere og vi gør det, desværre i flæng til højre og venster, når der er noget vi ikke forstår.
Münchausen by proxy
Den er er specielt led og skadelig, for mennesker der vitterligt ikke har gjordt, det denne diagnose siger man har og især i forbindelse med 2 diagnoser, bliver den brugt meget lemfældigt og bliver kritiseret af foreninger til disse diagnoser, autisme og kronisk træthedssyndrom, hvor af den sidste faktisk har været i folketinget, fordi de meget ofte bliver diagnostiseret under Münchausen by proxy, til stor skade for en familie. Så den har jeg en mening om, siden jeg er familie under den anden diagnose nævnt, hvor Münchausen by proxy også har gjordt meget stor skade, i årtier faktisk.
Det er tænkelig nogen mener "Køleskabsmødre" hører fortiden til, vores erfaring er, at kun ordet (eller bet-egnelsen) tilhøre fortiden, det hedder nu blot Münchausen by proxy. Men før vi kaster os selv alt for meget ind i den form for tænkning, bør vi kende konsekvenserne af vores brug, af den her diagnose, der kan ødelægge uskyldige og som ikke kan viskes om i porten til skolen, uden der er meget stor risiko for alvorlige konsekvenser til følge, for dem vi sladre om. Vi skal vide hvad det er vi selv siger og forstå hvad det er vi beskylder for, eller lukke i. Vi bekylder andre for et strafbart forhold, som kan udløse en fængseldom.
Vores personlig forløb startede med gentagende blærebetændelser, hos en, på tidspunktet udiagnostiseret autist. Og fordi jeg til en psykolog luftede en genkendelse (uden uddybning) blev det tilskrevet noget der aldrig blev sagt og kun hvad psykologen mente der blev sagt mellem linierne, anklagede jeg indirekte min egen mor for samme handlinger, jeg nu var anklaget for - ikke sært jeg holdte det meste for mig selv, så familien aldrig vidste dette, for hvordan siger man til en man elsker, fordi jeg er under anklage for disse ting, vender de mine ord til anklager af jer, så du nu fremstår som medanklaget, for ting ingen af os har gjordt. Det kan man da ikke sige, noget andet er hvor tungt ville dette ligge på dine skuldre, dig der er årsagen til det hele, dig der nu er ansvarlig for den udvikling?
Konsekvenserne for barnet selv
At de "arver" mistanken og anklagerne.
Munchausen syndrome by proxy and pediatric nephrology https://pubmed.ncbi.nlm.nih.gov/28606407/
Bertulli C, Cochat P. Munchausen syndrome by proxy and pediatric nephrology. Nephrol Ther. 2017 Nov;13(6):482-484. doi: 10.1016/j.nephro.2016.12.006. Epub 2017 Jun 9. PMID: 28606407.
Munchausen syndrome by proxy is a persistent fabrication of illness done by a person to another. Renal and urologic forms of this syndrome are not as uncommon as can be thought; a review of all the cases of Munchausen-by-proxy syndrome reveals that 25% of the children had renal or urologic issues. This syndrome can result in a serious diagnostic dilemma for the physicians; knowing this entity can allow early recognition of falsification and limit the physical and psychological damages caused in the victim. In this study,
(Urologic form: som sygdom i øvre/nedre urinveje)
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2018 - Diagnose navn til stadig debat
Munchausen Syndrome and the Wide Spectrum of Factitious Disorders https://pubmed.ncbi.nlm.nih.gov/29151093/
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2022
Selv ved ubegrundet rapporteringer, er anklageen beskyttet også imod sagsøgning fra dem de ubegrundet har anklaget andre.
Preserving Immunity for Reporters of Medical Child Abuse https://pubmed.ncbi.nlm.nih.gov/36223940/
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Munchausen syndrome and Munchausen syndrome by proxy in dermatology https://pubmed.ncbi.nlm.nih.gov/24613506/
Boyd AS, Ritchie C, Likhari S. Munchausen syndrome and Munchausen syndrome by proxy in dermatology. J Am Acad Dermatol. 2014 Aug;71(2):376-81. doi: 10.1016/j.jaad.2013.12.028. Epub 2014 Mar 6. PMID: 24613506.
Patients with Munchausen syndrome purposefully injure themselves, often with the injection of foreign materials, to gain hospital admission and the attention associated with having a difficult-to-identify condition. Munchausen syndrome by proxy occurs when a child's caregiver, typically the mother, injures the child for the same reasons. Cases of Munchausen syndrome and Munchausen syndrome by proxy with primary cutaneous involvement appear to be rarely described in the literature suggesting either that diagnosis is not made readily or that it is, in fact, an uncommon disorder. At the center of both conditions is significant psychological pathology and treatment is difficult as many patients with Munchausen syndrome when confronted with these diagnostic possibilities simply leave the hospital.
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Munchausen syndrome by proxy abuse: a foundation for adult Munchausen syndrome https://pubmed.ncbi.nlm.nih.gov/8573056/
Symptoms fabricated by the mother, and abnormal maternal pressurising of medical staff, resulted in misinter-pretation of sweat test results and a diagnosis of cystic fibrosis in a two year old child. Her mother refused to accept later medical evidence which irrefutably showed this diagnosis to be wrong. The child was extensively investigated and for most of her childhood was treated for pancreatic malabsorption. She progressed from an innocent child victim of Munchausen Syndrome by Proxy abuse to an accomplice in her mother's deception, and finally to adult Munchausen Syndrome behaviour. Munchausen Syndrome by Proxy abuse may programme a child into developing adult Munchausen Syndrome.
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Munchausen by Proxy Syndrome Associated with Fecal Contamination: A Case Report https://pubmed.ncbi.nlm.nih.gov/32978957/
Şahin A, Dalgıç N, Tekin A, Kenar J, Yükçü B. Munchausen by Proxy Syndrome Associated with Fecal Contamination: A Case Report. Turk Psikiyatri Derg. 2020 Fall;31(3):212-215. English, Turkish. doi: 10.5080/u25018. PMID: 32978957.
Factitious disorder imposed on another, also known as Munchausen Syndrome by Proxy (MSBP), is a serious form of child abuse that is difficult to diagnose. In general, signs and symptoms are fabricated or produced by the mother or the caregiver. Delay in diagnosis may cause serious morbidity and mortality.
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Fabricated or induced illness: From "Munchausen by proxy" to child and family-oriented action https://pubmed.ncbi.nlm.nih.gov/32805620/
Glaser D. Fabricated or induced illness: From "Munchausen by proxy" to child and family-oriented action. Child Abuse Negl. 2020 Oct;108:104649. doi: 10.1016/j.chiabu.2020.104649. Epub 2020 Aug 14. PMID: 32805620.
In fabricated or induced illness (FII), a child is harmed due to caregiver(s) behaviour and actions, carried out to convince mainly doctors that the child's physical and/or psychological health is more impaired than in reality. Harm is caused directly by the caregivers(s) and also often inadvertently by doctors' responses
Caregivers are motivated by gain from having their child treated as ill, and/or by erroneous beliefs about their child's health, either way needing medical confirmation about their contentions. Their behaviour is therefore directed primarily towards doctors. Most cases of FII present unexplained discrepancies between caregiver reports/actions and independent observations of the child. More rarely, the child has actual signs of illness, induced by the caregiver, occasionally fatal. Children are harmed in all aspects of life: health, daily functioning including education, and psychologically. Harm emanates directly from the caregiver(s) but also unintentionally from medical responses. Illness induction and clear deception by the caregiver require immediate child protec-tion. Otherwise, the initial focus is on assessing the child's current health and functioning rather than care-giver's mental health. If, beyond verified illness, there is no medical explanation for the child's reported ill-health, the family require help to function better. This requires co-ordinated, multidisciplinary rehabilitation and long-term monitoring. If caregivers refuse rehabilitation, child protection is required. Several unanswered questions remain.
TV2 2019
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Autisme
Verdens autismedag: Fordomme og fakta om autisme https://www.autismeforening.dk/news/nyheder-2020/international-autismedag-fordomme-og-fakta-om-autisme/
I tidligere tider talte man om køleskabsmødre - altså kolde mødre, der ikke tog vare på deres barn - som årsag til autismen.
Bog fra 2012 - Waging War on the Autistic Child https://www.skyhorsepublishing.com/9781616086145/waging-war-on-the-autistic-child/?fbclid=IwAR0jntYO6mG0SatuCw57cYx3oZd65UCOMgFEKDsuF-I9_Gt0n3kulh4OeNc
Som der står i beskrivelsen (oversat til dansk) - retssag om Arizona 5, som ødelagde en Arizona-familie. To forældre, med fem børn på spektret, blev anklaget for Münchausen syndrom, en sjælden form for børnemishandling og hvor læger, børnebeskyttelsestjenester og domstolene rottede sig sammen og hævdede, at forældrene fabrikeret symptomer i alle fem børn. Imidlertid præsenterer Wakefield rigeligt med beviser, der blev tilsidesat, og som ville have bevist forældrenes uskyld.
Familier, der er ramt af autisme, lider under store vanskeligheder og fordomme, især når de navigerer i det usikre farvand af diagnose, behandling og uddannelse. Den chokerende historie om Arizona 5-familien dykker ned i de enorme udfordringer, nogle forældre står over for, især hvis deres syn på, hvordan man behandler syndromet, ikke stemmer overens med den medicinske verdens standarder.
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The schools that spy on 'Munchausen Mums': Teachers accuse them of lying about children's autism to get attention https://www.dailymail.co.uk/news/article-2554867/The-schools-spy-Munchausen-Mums-Teachers-accuse-lying-childrens-autism-attention.html?fbclid=IwAR0tdb9jC2C8-5OpcK2TbVQG9eTE7s8MrODMCPOMmGkJ-2O0-UVVGPtKyh4
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Parebts accused of fabricated illness https://www.autismeye.com/parents-accused-of-fabricated-illness/?fbclid=IwAR1Dd99B7pTrVwG-_45sMBZtAHYiqDovKh8pPHNUZERodwTOvjldASxWpns
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Kronisk træthedssyndrom
Af: Liselott Blixt (DF), Karina Adsbøl (DF), Jeppe Jakobsen (DF) og Merete Dea Larsen (DF) Til: Sundhedsminister Ellen Trane Nørby (V) Samling: 2018-19 (1. samling) Status: Foretaget Forhandling den 12-03-2019
Liselott Blixt (DF)
Jeg har jævnligt i de 11 år har haft kontakt med patienter og pårørende, og samtidig har jeg også læst og fulgt med i, hvad man har gjort i andre lande. I efteråret fik jeg en henvendelse, som gør, at vi står her i dag. Det var en henvendelse fra et forældrepar på Fanø. Jeg har det på den måde, at jeg altså skal tale med folk, se folk i øjnene, og derfor tager jeg mange gange ud og besøger dem - også for at se, om de er seriøse og troværdige, og specielt også, fordi nogle af de her mennesker faktisk får at vide, at de nærmest lider af sygdommen Münchausen by proxy.
Jeg mødte det her forældrepar - det var ganske almindelige mennesker - og de fortalte om nogle frygtelige år med en syg datter, som de kæmpede for at kunne hjælpe. Da jeg hørte deres historie, og det er jo ikke den første, jeg har hørt, jeg har hørt flere i løbet af de her år, så tror man jo næppe, at det er Danmark, man bor i. Jeg tror, at de fleste ligesom jeg forventer et social- og sundhedsvæsen, som er til for borgerne, og som kerer sig om den enkelte. Men det var ikke det, jeg hørte.
De har en datter, som tilbringer næsten 24 timer i sengen, ikke tåler lys, lyd og berøring, og som for hver dag, der går, bliver svagere og svagere, og som efterhånden ikke kan se muligheder i livet. Vi taler om et sundheds-væsen, hvor læger frasiger sig at behandle hende, nægter at komme på sygebesøg, og et socialvæsen, som nægter at bevilge hjælpemidler, og som beskylder forældrene for at lide af Münchausen by proxy.
Exaggeration of Symptoms or Psychiatric Munchausen's Syndrome by Proxy?
https://www.researchgate.net/publication/229980114_Exaggeration_of_Symptoms_or_Psychiatric_Munchausen's_Syndrome_by_Proxy
July 2003 Child and Adolescent Mental Health 5(2):69 - 75DOI:10.1111/1475-3588.00287 Authors: Fiona Mcnicholas, Vicky Slonims, Hilary Cass
Prompt and accurate diagnosis of Munchausen's syndrome by proxy is essential in order to minimise the risk of iatrogenic and parentally-induced harm to the child. However, inaccurate diagnosis of MSBP may have devastating consequences for the child, family and professionals involved. 'Psychiatric' Munchausen's syndrome by proxy, which involves the presentation of signs and symptoms suggestive of a psychiatric disorder in the child, is even more difficult to diagnose and requires an unbiased and full assessment by the appropriate multidisciplinary team.
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Pheby D. Diagnose and be damned. Corroboration is important when children's illnesses are diagnosed. BMJ. 2000 Apr 8;320(7240):1004. PMID: 10753161; PMCID: PMC1117876.
Innocent people are made angry by accusations that, if made without justification in any other context, could end in High Court actions for defamation. They often react vigorously to them, to give paramount importance to the interests of their children and to preserve the integrity of their families. Clinical opinion may be highly speculative in nature. Yet alone of professionals, some doctors seem to regard their opinions as paramount, even when they fly in the face of the facts.
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Myalgic Encephalomyelitis
Chronic Fatigue Syndrome
Diagnosis and Management
in Young People:
A Primer https://ccisupport.org.nz/wp-content/uploads/2020/03/Pediatric-Primer-monograph-2-26-2018-with-index.pdf?fbclid=IwAR1odKZiGsUWhT49Ls3Ws6M4OBdPSN_iv9kd9lFaBy224ELRkrnDAXgd2Mw
Lack of familiarity with diagnostic - Misdiagnosis - School refusal - School phobia - Munchausen syndrome by proxy - Fabricated or induced illness.
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J B Wrighta, D W Beverleyb, Dr J B Wright, Lime Trees Child and Family Unit, 31 Shipton Road, York YO3 6RE, UK https://dx.doi.org/10.1136/adc.79.4.368
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Parents of ME children accused of abuse https://www.theguardian.com/uk/2001/sep/16/theobserver.uknews1?fbclid=IwAR3FMbxdkGHi6akaJ2Q4HsW_aYT5Xv6LqyVWAF71laqIxyrcaEFabIYqafM
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A Child's CFS Misdiagnosed as Munchausen's by Proxy https://www.fightingfatigue.org/a-childs-cfs-misdiagnosed-as-munchausens-by-proxy/?fbclid=IwAR26-FfRmZ5_MlpIF1PM8m_4MM17jiqLhd0C5UPtWD5CeAoDXG7xxCgEros